AAMDS Patient Conferences 2016

Posted: March 8, 2016 | Author: Weill Cornell Leukemia Program | Filed under: Clinical Trials, Leukemia News, Patient Education, Uncategorized | Tags: Acute Myeloid Leukemia, blood cancer treatment, Blood Disorders, Gail Roboz, Leukemia Treatment, Myelodysplastic Syndrome, Weill Cornell | Comments Off

Following are conferences conducted by AAMDS afford you the opportunity to meet top experts and fellow patients at a free program near you:

Living with Aplastic Anemia, MDS, and PNH

Washington, D.C.
Saturday, March 19, 2016
8:30a to 4:30p
For location and registration

Cincinnati, OH
Saturday, April 30, 2016
8:30a to 4:30p
For location and registration
*Interactive kids program – art activities to further their understanding, ice cream social

Raleigh, NC
Saturday, July 16, 2016
8:30a to 4:30p
For location and registration

San Diego, CA
Saturday, September 17, 2016
8:30a to 4:30p
For location and registration
*Disease track sessions will be offered in Spanish at this location. For more information and registration, please visit aamds.or/eventos

San Antonio, TX
Saturday, October 8, 2016
8:30a to 4:30p
For location and registration
*Disease track sessions will be offered in Spanish at this location. For more information and registration, please visit aamds.org/eventos

West Palm Beach, FL
Sunday, November 6, 2016
8:30a to 4:30p
For location and registration

Seattle, WA – Welcome to the 6th Biennial Conference on Marrow Failure
Saturday, June 18, 2016
8:30a to 4:30p
For location and registration
*Joint event with the Fred Hutchinson Cancer Research Institute

For questions and more information please visit the AAMDS conference page

Awareness Week March 1 to 7, 2016

Posted: February 12, 2016 | Author: Weill Cornell Leukemia Program | Filed under: Clinical Trials, Leukemia News, Uncategorized | Tags: Blood Disorders, hematology, Leukemia, Myelodysplastic Syndrome, Weill Cornell | Comments Off

Are you or a loved one affected by aplastic anemia, MDS (myelodysplastic syndromes), PNH (paroxysmal nocturnal hemoglobinuria), or PRCA (pure red cell aplasia)?

This special week corresponds with the National Organization for Rare Disorders (NORD)’s Rare Disease Day, which is held on February 29.

For more information please visit AAMDS

Are You a Patient Taking Vidaza or Dacogen?

Posted: February 8, 2016 | Author: Weill Cornell Leukemia Program | Filed under: Clinical Trials, CRUSH!!MDS, Laboratory Research, Patient Education, Uncategorized | Tags: Blood Disorders, dacogen, Gail Roboz, Leukemia Treatment, MDS, Myelodysplastic Syndrome, vidaza, Weill Cornell, Weill Cornell Leukemia Program | Comments Off

Seeking Research Volunteers

Predicting Response To Your Myelodysplastic Syndrome (MDS) Treatment

Azacitidine (Vidaza^®) and decitabine (Dacogen^®) are FDA-approved drugs for the treatment of MDS. While these drugs help many patients with MDS, sometimes patients who initially respond to these drugs eventually lose their response. Why? Why do the drugs stop working? MDS-CRC investigators are trying to answer this question. Through CRUSH!!MDS, we are recruiting patients who have not responded or lost their initial response to azacitidine or decitabine. Patients will be able to have blood drawn at the time of a routine visit to their local doctor and we will arrange for the blood to be delivered to Weill Cornell Medical College, at no cost to the patient. At Weill Cornell, the blood will be analyzed in the laboratory of Dr. Joseph Scandura, M.D.

For more information about the study and the CRUSH!!MDS initiative, please visit our website.

Dr. Ellen Ritchie Receives $112,200 Contribution to Leukemia Fighters from the Plumbing Industry Promotion Fund of the City of New York and the Association Contracting Plumbers of the City of New York

Posted: June 3, 2013 | Author: Weill Cornell Leukemia Program | Filed under: Accolades | Tags: Ellen Ritchie, Leukemia, Weill Cornell, Weill Cornell Leukemia Program, Weill Cornell Medical College | Comments Off

Weill Cornell Cancer Center Highlighted in New York Times

Posted: April 22, 2013 | Author: Weill Cornell Leukemia Program | Filed under: Accolades, Leukemia News | Tags: Acute Myeloid Leukemia, cancer treatment, Gail Roboz, Leukemia, New York Presbyterian, Weill Cornell | Comments Off

An April 21, 2013 article in the New York Times describes the budding field of Precision Medicine. The article highlights Weill Cornell’s state-of-the-art Cancer Center and how Precision Medicine is being used to treat patients with Leukemia. To read the full article, click here.

Dr. Gail Roboz featured in Parade Magazine

Posted: April 8, 2013 | Author: Weill Cornell Leukemia Program | Filed under: Accolades, Leukemia News | Tags: Blood Disorders, Gail Roboz, MDS, Myelodysplastic Syndrome, New York Presbyterian, Weill Cornell | Comments Off

Dr. Gail Roboz was interviewed and photographed alongside Good Morning America anchor and her bone marrow transplant doctor on March 31, 2013. To read the full article, click here.

Leukemia Program Nurse Practitioner, Sandy Allen-Bard, Moderates Educational Program on CML

Posted: March 5, 2013 | Author: Weill Cornell Leukemia Program | Filed under: Patient Education, Physician Presentations, Uncategorized | Tags: Blood Disorders, cancer treatment, chemotherapy, Chronic Myeloid Leukemia, CML, Leukemia, Weill Cornell, Weill Cornell Medical College | Comments Off

Leukemia Program Nurse Practitioner, Sandy Allen-Bard, moderated a Medscape Eduation program titled, The Nurse View: Common Clinical Challenges and Best Practices in Chronic Myeloid Leukemia. The view the program (which requires that you create a free Medscape account), click here.